Thursday, May 12, 2016

Malia's Bone Graft Surgery

This girl of ours continues to amaze us!  A week before her bone graft surgery, I took her to the doctor for her pre-op appointment.  I broke the news that she had surgery coming up.  First she was mad.  Then she started to cry.  She was upset that we hadn't told her earlier, even though she had requested that we only give her a weeks notice before the surgery.  We ran a few errands and then headed to Tim's for some comfort food. 
It turns out this girl has been doing a lot of thinking, and she is amazingly wise!  So she tells me this..."Mom, the other night I was lying in bed, wondering why people have disabilities.  And then I was wondering why I have this (meaning cleft lip/palate), and I realized that maybe it's so other people can see Jesus through my story!"
Yup!  I choked back the tears and agreed! (Well, maybe the tears didn't choke back so well!) 
So, in sharing these photos...Malia has decided she doesn't care who sees them.

Malia was a champ this time around!  She always gets more and more nervous as she gets closer to being sedated.  I'm learning to speak up more, even in the OR.  It really does help to give suggestions on what works for Malia.  She cried a bit, but was incredibly brave and strong.  She managed to focus on taking deep breathes and squeezing my hand. 
The surgery went very well, although the surgeon is concerned about how well the graft will take around one of her teeth.  So that's something you could pray about when you think of her.
We bought an iPad for the kids for Christmas and it's been such a gift during these hospital stays.  It is one of the few times Malia actually gets to use it!
As usual, the nights spent in the hospital are rough.  The first night was awful!  I don't want to say too much, but we entered the room as two police officers left.  Lets just say the following words were overheard..."teen airlifted, found unconscious and beaten, alcohol poisoning, kit..."  And it all seemed to be "normal" for this gal and her family.  We had all managed to dose off and then were interrupted when a relative came to visit this gal around 10:30 pm!  They thought it was a great idea to visit loudly, eat, and watch a movie till past midnight! 
Malia was exhausted the next day and asked for earplugs and managed to have a decent nap.
Then her Auntie Rita came for a very special visit!  These two are kindred spirits and they love each other well!  We couldn't be more grateful for this special lady!

Day 2
Malia's surgeon and nurses were once again astounded at how well Malia handled her pain, how she managed to drink, and how well she handled everything.  Apparently they never have kids leave after two nights in the hospital...but Malia did!  She's such a trooper!!
Malia was very swollen and bruised.  The bruises were hard to capture on camera.  Her skin tone hides them well.  These photos make the bruising look a lot better than it actually was!
Day 3                                                                 Day 4                
Day 5              

Day 6                                                                      Day 7          


Day 10                  
We did a little math, and so far this year (19 weeks), Malia has been on a liquid diet for about 12 weeks and a soft/mushy food diet for about 2-3 weeks!  That's a restricted diet for 14-15 weeks!  And for the most part, she does not complain!  She did let me know, in no uncertain terms, that blended chicken noodle soup is disgusting!! 
This was Malia's fifth surgery in a little over a year.  We are DONE with surgeries!  But the end is in least temporally! Malia will have another surgery in about 6 months to release her upper lip.  And then she will have a 5-6 year break!!!  Yah!!! We couldn't be more excited about that!!!





1 comment:

Anonymous said...

Sounds awesome! Yay Malia!