Sunday, May 25, 2014

Malia's Dance and Surgery Update

 
Malia had her dance recital today and did an amazing job.  She took ballet this year and loved it.  She has already decided she will not be dancing next year and wants to take voice lessons and piano instead, so hopefully I can find someone in our area who can teach her.  
 
 
The recital was a good distraction and kept her occupied for the morning.  Malia is nervous about tomorrow, but all the excitement of dance this morning and packing her bag with all kinds of treasures has kept her in a positive mood.
 
We had an unexpected appointment with the surgeon on Friday to take an impression of Malia's teeth and to review what will happen.  As I've said before, Malia's case is a difficult one and her team of doctors have worked long and hard to figure out the best way to approach her surgery.  Originally they were going to do the bone graft, move the teeth and the tongue graft tomorrow.  However, there has been a change in plans.  Tomorrow's surgery will only be to move her teeth into the proper position and to attach wires to the braces that are already in place.  This will cause a hole to form in her palate and it's a bit of a guessing game to know how big it will actually be.  Based on the model, it looks to be a fairly significant opening.  I am not looking forward to the challenges of Malia trying to eat without food coming out of her nose.  Poor girl!
 
In spite of these changes, everything else still stays the same.  She will still have a 2-3 day hospital stay and will be on a liquid/soft food diet for at least 4-6 weeks. 
 
The plan is to do the bone graft and tongue graft in 2 separate surgeries.  The first surgery should happen in about 3 months with the second surgery following 3 months later.  Both surgeries will require Malia to be on a liquid/soft food diet for 4-6 weeks. 
 
I trust our team of surgeons, but am disappointed that this is going to be a longer, more difficult process than we had expected.  I wish it could all be done at the same time as originally planned, but such is life!  :(
 
 

1 comment:

jean said...

That is disappointing to have it dragged out so much longer but hopefully it will all be in manageable doses!
I, am praying for you all and please if I can help in any way let me know!